‘Caught in the middle’: A battle between Vertex and insurers is leaving cystic fibrosis patients with crushing drug costs

“It’s a pharmaceutical company versus an insurer, and each is maneuvering to increase their profits. And we all understand their goals are to be profitable,” said Meghan McGarry. “It’s a battle about who makes the most money,” she told us. “And patients are being putting at risk.”

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Non-White Newborns With Cystic Fibrosis More Likely To Be Missed in Screening

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National Geographic: Cystic Fibrosis Often Goes Underdiagnosed- Unless You’re White